What You Need to Know About Trisomy 18-Edwards Syndrome
Trisomy 18, which is also known as Edwards Syndrome, is a rare complex disorder that may be identified in utero. This potentially fatal disorder happens when there is an...
Read MoreTag Archives: medically complex
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A Guide to Using Masks & Medically Complex Children
Numerous states and territories have mandated or encouraged citizens to wear masks in an effort to slow the spread of COVID-19. Masks are an important tool in protecting people...Read More -
What You Need to Know About Spinal Muscular Atrophy
Spinal muscular atrophy (SMA) is a condition that makes it hard to use your muscles. It’s most common in babies and children and includes symptoms like muscle weakness, limited...Read More -
Winter Safety Tips for Medically-Complex Children
Winter Safety for Medically Complex Children. It’s hard being cooped up all winter long, especially when you have a full household of children looking to get some fresh air!...Read More -
Benefits of Pediatric Private Duty Nursing (and How to Get Medicaid to Pay)
If your child is medically complex and requires pediatric private duty nursing, it’s important to know that you can receive this care in your home. The Katie Beckett waiver...Read More -
What is the Katie Beckett Waiver? How Can It Help My Child Get Medical Care?
When a child has complex medical needs, it impacts everyone in the family. Parents often end up feeling lonely and isolated as they juggle hospital stays, doctor visits and...Read More
