Tag Archives: medically complex

Tuesday, March 2nd, 2021

What You Need to Know About Trisomy 18-Edwards Syndrome

Trisomy 18, which is also known as Edwards Syndrome, is a rare complex disorder that may be identified in utero. This potentially fatal disorder happens when there is an...
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Wednesday, January 27th, 2021

A Guide to Using Masks & Medically Complex Children

Numerous states and territories have mandated or encouraged citizens to wear masks in an effort to slow the spread of COVID-19. Masks are an important tool in protecting people...
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Sunday, January 10th, 2021

What You Need to Know About Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a condition that makes it hard to use your muscles. It’s most common in babies and children and includes symptoms like muscle weakness, limited...
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Thursday, January 7th, 2021

Winter Safety Tips for Medically-Complex Children

Winter Safety for Medically Complex Children. It’s hard being cooped up all winter long, especially when you have a full household of children looking to get some fresh air!...
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Friday, November 20th, 2020

Benefits of Pediatric Private Duty Nursing (and How to Get Medicaid to Pay)

If your child is medically complex and requires pediatric private duty nursing, it’s important to know that you can receive this care in your home. The Katie Beckett waiver...
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Wednesday, November 18th, 2020

What is the Katie Beckett Waiver? How Can It Help My Child Get Medical Care?

When a child has complex medical needs, it impacts everyone in the family. Parents often end up feeling lonely and isolated as they juggle hospital stays, doctor visits and...
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